Problem:
Fragmented Resources & Stigma in Health Communication
The Endometriosis Network Canada (TENC) faced challenges with its outdated website:
Information Overload: Critical resources for patients, caregivers, and healthcare providers were buried under dense text and poor navigation, making it difficult for users to find tailored support.
Stigmatized Content: Endometriosis-associated topics like sexual pain and infertility were presented without sensitivity, deterring users from engaging openly.
Mobile Accessibility: The site was not optimized for mobile devices, despite 70% of users accessing health information via smartphones.
Research: Understanding User Needs
User Surveys & Interviews:
85% of patients reported frustration with locating condition-specific resources (e.g., treatment options, clinical trials).
Caregivers emphasized the need for clear, jargon-free content to advocate effectively for loved ones .
Competitor Analysis:
Leading health platforms like Sex, Pain, and Endometriosis prioritized trauma-informed design, using anonymized testimonials and inclusive imagery to reduce stigma.
Usability Testing:
Think-aloud sessions revealed pain points in navigation, such as confusing menu labels (e.g., “Projects” vs. “Resources”) and slow load times
INFORMATION ARCHITECHTURE